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I normally would not do this but my newborn needs lots of prayer

259,773 Views | 1515 Replies | Last: 12 hrs ago by monarch
GrapevineAg
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Sitting at an Xmas party trying to keep dry eyes while reading the updates. Turning in my man card for a bit. Merry Christmas and Happy Holidays, OP!
StickTogetherAgs
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jeffk
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Merry Christmas and continued blessings!
Spinnerag
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TMF
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Great news. Merry Christmas.
Roy coy
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That's awesome.
hockeyag
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Great blessings from God. Merry Christmas!
ontheway
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A beautiful young Ag! Merry Christmas to all the family. God is good.
1996OlAg
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Such good news! God is Great!
The Good Aggieboy19
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So glad to see all these good updates!!!
IslandAg76
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Absolutely GREAT!!
West-0-ag
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T&P
Claud
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Great Update!

Whoop!!
pagerman @ work
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Great news! May the good lord continue to bless you all!
Yell Practice
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Great News !
SpreadsheetAg
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Excellent news! My 3.5 year old and 6-month old girls are my pride and joy. Can't ditto enough to hug your kids and tell them you love them.
agAngeldad
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Great news.
cevans_40
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Best thread ever
CajunAggie
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Awesome! God bless Adalyn and your entire family.
bizzy
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Just to ease any lingering doubts in your mind, because, I know they are there. My son was diagnosed with stage 2 Wilms' tumor at 27 months.

He's 15 now with a learner's permit, which incites a whole other list of worries!


Unsolicited advice:
  • Research the long-term side effects of the chemo. There's nothing that can't be fixed or dealt with. He started playing tee ball when he was four. But, if you know them, you can recognize and move forward.
  • Even though you research and know the effects, she may not have ANY of them. My son had only a few (his teeth aren't as white as they should be - fixable, he was a toe-headed blond before chemo - fixable, etc.)
  • Nephrectomy scar - I pounded into his brain "Chicks dig guys with scars!" but he still hid it up until a few years ago. Your situation, having a girl, may be completely different. Again, fixable. We also gave him the "that beats the alternative" line.
  • Again with scarring - she may have discomfort with scar tissue. They have methods of, for lack of a better word, massaging out the connective-ness of said tissue. Do that early on, if you can. We didn't and should have.
  • Get her involved with cancer/survivor charities. Childhood cancer research needs more attention. My son is involved with a 5k charity run that is about to get a national charter. Which, I hope, will help him with "survivor" scholarships in a few years!

If you have any questions, you can email me at jacobwilson at suddenlink dot net.

Again, congrats on a successful journey and best wishes for her and your family.

Jacob
Yell Practice
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May God in heaven continue to bless you real good!
ICKyle64
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Fantastic.....My your family continue to be blessed.....
jess09
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T&P
ahlongslide
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Thanks Jacob! All good advice.

The surgeon did an amazing job with her scar. No wavy lines or thick parts. Just a thin line that half encircles her midsection. I considered getting a "I'm fearfully and wonderfully made... " tattoo in a thin line in the same spot on my stomach so she wouldn't be alone, but I'm not sure if that would help anything. I always tell her it's beautiful, but she hasn't hit the self-conscious age yet.

We never considered having her do charity events to raise funds for child cancer research. Good idea. She did do the blood samples every visit for childhood solid mass research. Thanks again!
ctag76
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Prayers on the way!
"But there's a spirit can ne'er be told ... It's the spirit of Aggieland."
Yell Practice
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We continue to Pray for sweet little Adalyn. May God keep Blessing !
Yell Practice
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The updates are great. Keep them coming.
agmrpink
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Thanks for the update, OP! Your beautiful little girl is a champ!
rwhitlock3
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So encouraging reading through this thread. The power of prayer is amazing. Thanks OP and glad to hear everything worked out for the best!
FriscoAggieFan
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Praises indeed. Beautiful baby and I am so glad she is doing well.
Keep the faith.
ColoradoMooseHerd
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91AggieLawyer
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An Aggie buddy's son had a cancerous kidney removed almost 9 years ago. At one point, it didn't look like he was going to make it, but he's still around.
dixichkn
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Congratulations on surviving the journey. What a little sweetheart..........continued well wishes your way from all of us.
sharpdressedman
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ahlongslide
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12/23/2017 Update

We went for X-Rays and Ultrasounds this past Monday at Texas Children's West Campus. Adalyn's now old enough to stand still for the scans, so it was the easiest visit thus far. Every scan before now we'd have to hold her down on the table while she screamed, which was traumatic for everyone.
Scans were still clear, praise God!

I was holding a sleeping Adalyn this morning while gazing at our Christmas tree. It's covered in ornaments from Scottish Rite in Atlanta. They gave them all to us the day after her surgery 4 years ago (when they were tearing down the tree in the atrium of the hospital). They don't really match anything else we have, but they are a good reminder of how blessed I am to be able to hold my baby every day.

She sneaks in our room almost every night and curls up next to me with her head on my arm or chest. I never sleep well after that point, but I just remind myself that someday she'll be a teenager and so I cherish it while I can.

Thanks again, zoo, for all the support 4 years ago!
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