I really appreciate y'all sharing your thoughts/practices, and have a few comments/questions:
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Extrapolating T2D all cause mortality to T1D is very dangerous and is what drives many doctor discussions when the diseases are very different and should have completely different monikers.
I 100% agree and often wish that T1D had a complete different name since so many people assume that it is the same thing as T2D. I get frustrated when people don't know the difference because I'm not fat or old, but it's not their fault they have the same name.
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-The biggest rise in mortality is the "Dead in the Bed" syndrome. The expectation is that assuming treatment plans stay the same that this will outpace complication related deaths in T1D by 2050. Dead in the bed is usually brought on by individuals with very high insulin resistance overdosing in the evening and dying in their sleep. For this reason he says people need to understand that having 2, yes, two low blood sugars during a week is not acceptable.
This is probably the main thing that scares me, honestly. I don't understand that him saying that two lows a week is unacceptable. Lows obviously aren't good, but working out, eating something you aren't 100% sure about the carbs, and other issues can cause lows. I guess it depends on what you consider a low, too. I treat anything 75 and below, but I would guess that RWC has a much lower threshold for a low BS.
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-I've discussed keto and HPHP diets. His assertion is that if you treat T1D with that then you need to be on gluco****e or metformin if Simulin is not tolerated. My wife is not quite on a pure paleo diet, but it's close and is on metformin. I've considered stealing it as guys with T1D on metformin get so ripped up it isn't funny.
I am not familiar with any of these - mind expanding on what they are?
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The single most important thing that ultimately will predict a full life is IMO ensuring total daily dose increments slightly over time. Diet, exercise, and even sexual activity (yes that), drives down TDD.
I think you left out a word - I am assuming you meant to say "ensuring total daily dose increments
decrease slightly over time" ? I don't have any research or reading to back me up, but I agree with this.
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There are some interesting things on the horizon, but I don't spend a lot of time following it. Type 1 is just something that I've accepted I'll always have. I won't be disappointed if some of these breakthroughs don't materialize. That written, I intend to care for myself so if something is developed that could cure me, my body will be undamaged. What good is a cure if your body is in shambles? There is some diabetes damage that cannot reverse. Neuropathy is one of those complications that will not reverse.
I definitely take the approach of the bold part. IF a cure is developed, awesome, if not, diabetes isn't the worst disease in the world to have.
I will definitely continue reading Dr. Bernstein's book. I have enjoyed it so far and can tell that I will learn a lot about diabetes from it. It is amazing how little you learn unless you have a good doctor.
I don't think I will go with the 6-12-12 carb diet, but a high protein/high fat diet, with a greatly reduced amount of carbs seems like a good place to start for me. I currently have 18-65-??(Anywhere from 30-150). I would love to have my A1C in the spring in the 5s.