I am hoping I can get some advise. I am 50 years old. I have been two 4 cardiologists in the last 3 months. Yes, I know that sounds ridiculous, but below is the history, which I think sort of explains things. This all started with chest pain and shortness of breath in the middle of the night back in August.
1.) Cardiologist #1 - ran blood work (total cholesterol 202, LDL 126, no "little a" marker), nuclear stress test (passed), and echo (said "moderate aortic valve regurgitation"), calcium scan - 1005. He said he wanted to do a catheterization due to the calcium score, but said the nuclear stress test passing means I have no blockage over 70% and he would not stent anything under 70%. So, I questioned why do the cath and he said he was fine not doing it, so I didn't. This doc told me the aortic valve "is what it is". I was having several side effects after starting the statin. Tried to get someone from his office to call me back for 2 weeks and never got a call back (they finally called 3 weeks later after I made an appt with #2).
2.) Cardiologist #2 - went to get help with statin dosage since no follow up from #1. He said "with a calcium score of 1005, you must get a catheterization" and told me the aortic valve was not an issue. Said he would stent if he found something >70%. Woke up in recovery and told I had a 90% mid LAD blockage and 4 other 40-50% blockages. Asked if he put in a stent and he told me no and that I really needed to go see a surgeon about getting a "minimally invasive bypass" . He was almost insistent about this. I asked if a stent would be a viable solution and his response was "sure, it's an easy one to do and I do them all the time". I was still under meds, so that afternoon I messaged through mychart because I wanted to ask some questions - i.e, why was stent not a good option, pluses and minuses of stent vs. bypass, etc. The assistant was very nice and set up a video visit for the next morning. The doctor skipped it and the assistant called 15 min into the appt and told me "the doctor said he doesn't have time to talk to you today". I didn't feel like this was appropriate, so I didn't move forward with this doctor.
3.) Cardiologist #3 and #4. At this point, I was really confused about all of this, so I made appts with 2 other docs hoping to get an aligned path forward. I just wanted to hear a similar opinion from 2 doctors. Both reviewed my records. Both said exactly the same thing - cardiac MRI to assess aortic valve. If it needed surgical repair, then they would fix it and do a bypass while in there (open heart surgery). If the valve was OK, then they would stent the LAD blockage. Both said the stent was in a "simple" straight run and wouldn't be an issue. So, I got the cardiac MRI. It showed 10% regurgitation, which is very minimal. Went for my follow up appointment thinking I would be getting a stent, as discussed. The doctor said the aortic valve was fine but completely changed course and said he wanted to do another catheterization, but said he may end up sending me to a surgeon for open heart surgery (i.e do another catheterization with no intervention when he already had all the imaging from the 1st cath). I asked him why his direction changed and he said "well, your young, a bypass might be the right thing to do". I left completely confused. So, I made an appointment with #4 and took my cardiac MRI to him. He also said valve was fine. He went on to say, after also saying in appt #1 that he would place a stent if the aortic valve was OK, "I am going to put you on a treadmill and see what you can do. If you pass, I am going to manage this with meds since you don't have ongoing symptoms, angina, etc.".
I am sorry for the long post. But, I am hoping someone can help shed some light on why I have had some many varying opinions and changes of course. It's a little frustrating. I am almost at the point of just going on with my life and dropping this all together.
1.) Cardiologist #1 - ran blood work (total cholesterol 202, LDL 126, no "little a" marker), nuclear stress test (passed), and echo (said "moderate aortic valve regurgitation"), calcium scan - 1005. He said he wanted to do a catheterization due to the calcium score, but said the nuclear stress test passing means I have no blockage over 70% and he would not stent anything under 70%. So, I questioned why do the cath and he said he was fine not doing it, so I didn't. This doc told me the aortic valve "is what it is". I was having several side effects after starting the statin. Tried to get someone from his office to call me back for 2 weeks and never got a call back (they finally called 3 weeks later after I made an appt with #2).
2.) Cardiologist #2 - went to get help with statin dosage since no follow up from #1. He said "with a calcium score of 1005, you must get a catheterization" and told me the aortic valve was not an issue. Said he would stent if he found something >70%. Woke up in recovery and told I had a 90% mid LAD blockage and 4 other 40-50% blockages. Asked if he put in a stent and he told me no and that I really needed to go see a surgeon about getting a "minimally invasive bypass" . He was almost insistent about this. I asked if a stent would be a viable solution and his response was "sure, it's an easy one to do and I do them all the time". I was still under meds, so that afternoon I messaged through mychart because I wanted to ask some questions - i.e, why was stent not a good option, pluses and minuses of stent vs. bypass, etc. The assistant was very nice and set up a video visit for the next morning. The doctor skipped it and the assistant called 15 min into the appt and told me "the doctor said he doesn't have time to talk to you today". I didn't feel like this was appropriate, so I didn't move forward with this doctor.
3.) Cardiologist #3 and #4. At this point, I was really confused about all of this, so I made appts with 2 other docs hoping to get an aligned path forward. I just wanted to hear a similar opinion from 2 doctors. Both reviewed my records. Both said exactly the same thing - cardiac MRI to assess aortic valve. If it needed surgical repair, then they would fix it and do a bypass while in there (open heart surgery). If the valve was OK, then they would stent the LAD blockage. Both said the stent was in a "simple" straight run and wouldn't be an issue. So, I got the cardiac MRI. It showed 10% regurgitation, which is very minimal. Went for my follow up appointment thinking I would be getting a stent, as discussed. The doctor said the aortic valve was fine but completely changed course and said he wanted to do another catheterization, but said he may end up sending me to a surgeon for open heart surgery (i.e do another catheterization with no intervention when he already had all the imaging from the 1st cath). I asked him why his direction changed and he said "well, your young, a bypass might be the right thing to do". I left completely confused. So, I made an appointment with #4 and took my cardiac MRI to him. He also said valve was fine. He went on to say, after also saying in appt #1 that he would place a stent if the aortic valve was OK, "I am going to put you on a treadmill and see what you can do. If you pass, I am going to manage this with meds since you don't have ongoing symptoms, angina, etc.".
I am sorry for the long post. But, I am hoping someone can help shed some light on why I have had some many varying opinions and changes of course. It's a little frustrating. I am almost at the point of just going on with my life and dropping this all together.