Ocular Melanoma

imnag07

Joined: Sep 1, 2003

Posts: 777

User Profile Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

5:30a, 7/26/24

AG

Howdy.

Received word earlier this week that I may have choroidal melanoma. Was referred to a specialist in the Katy area (Dr. Amy Schefter). She seems to be top notch.

I'm processing everything and going through all kinds of emotions before receiving a diagnosis, but was curious if any others on this board have had or are dealing with this form of cancer.

The outlook is scary if it happens to metastasize, but the numbers seem to be all over the place in the articles I've read.

If anything, maybe my fellow Ags will say a few prayers.

2

Nixter

Joined: Apr 18, 2000

Posts: 13,492

User Profile Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

6:21a, 7/26/24

AG

Praying for you imnag07.

2

briceag66

Joined: Oct 27, 2000

Posts: 220

User Profile

Private Message

Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

6:36a, 7/26/24

AG

Prayers for you.

2

88Warrior

Joined: Mar 31, 2018

Posts: 1,504

User Profile Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

9:27a, 7/26/24

Prayers for you!

1

Farmer_J

Joined: Mar 6, 2024

Posts: 500

User Profile Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

10:02a, 7/26/24

A friend had melanoma behind his eye. Discovered after vision went blurry. Lost his eye having the tumor removed. As far as I know, no complications after the surgery. It's been 5-6 years probably and you'd never know if you met him.

Take care. I'm sure it's a lot to process.

2

DeepintheHeart06

Joined: Feb 18, 2021

Posts: 55

User Profile

Private Message

Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

12:31p, 7/26/24

AG

A good friend of mine is an opthalmologist and one of my partners was unfortunately diagnosed with ocular melanoma a few years ago. When I asked her for recommendations she stated that Scheffler is the best in Houston. And that Carol Shields in Philadelphia is pretty much the unanimous world expert and has written the book.

FWIW he initially saw the group at MD Anderson and they recommended removing his eye. He then went to Shields for a second opinion and they treated him without removing his eye and he has been great since then and still working without any vision issues.

Best of luck and prayers for a recovery.

5

imnag07

Joined: Sep 1, 2003

Posts: 777

User Profile Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

1:42p, 7/26/24

AG

Thanks all.

Got 3 kids under the age of 9 with a baby on the way in December. I'm hopeful this is God's timing in the since that with the baby due in a few months, I needed to reset, fixate on Him, re-prioritize, start the healing (or just get the scare, if benign), and go be the best Dad/Husband I can be for my family.

Found some solace in learning that there's a patron Saint Lucy for eye diseases. There's a few prayers that I'll be saying for her to intercede on mine and my family's behalf.

6

Nixter

Joined: Apr 18, 2000

Posts: 13,492

User Profile Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

In reply to imnag07 • 9:22a, 10/3/24

AG

imnag07 said:
Thanks all.

Got 3 kids under the age of 9 with a baby on the way in December. I'm hopeful this is God's timing in the since that with the baby due in a few months, I needed to reset, fixate on Him, re-prioritize, start the healing (or just get the scare, if benign), and go be the best Dad/Husband I can be for my family.

Found some solace in learning that there's a patron Saint Lucy for eye diseases. There's a few prayers that I'll be saying for her to intercede on mine and my family's behalf.

How you doing, imnag07?

I've also got three kids under 9 with one on the way in January.

txags92

Joined: Jan 20, 2003

Posts: 20,536

User Profile

Private Message

Ignore User Stop Ignoring

How long do you want to ignore this user?

24 hours One week Permanently Cancel

11:22a, 11/25/24

AG

My sister had this over 20 years ago (hers was on her retina) and she had it treated by Dr. Gombos at MD Anderson. They treated hers with short duration radiation and she has been cancer free ever since. She had a few complications over the years from the effects of the radiation on the healthy parts of her retina, but nothing serious. She would recommend Dr. Gombos in a heart beat.