"The mean (SD) survival time after dementia diagnosis was 4.1 (2.6) years, and more than 2 years were spent in moderate (14-month) and severe (12-month) stages"

Dementia after age 75: survival in different severity stages and years of life lost - PubMed (nih.gov)

My dad had dementia the last four years of his life, which is right in line with this study. He died at 83.

Grandmother was diagnosed with Alzheimers at 80 and lived to 99 years old. She turned Ferel and died because she couldntswallow anymore.

My Mom diagnosed with Alzheimers at 66. Passed away at 76. Last 4 years of her life she didnt remember any of us.

The Fall Guy said:

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Grandmother was diagnosed with Alzheimers at 80 and lived to 99 years old. She turned Ferel and died because she couldntswallow anymore.

My Mom diagnosed with Alzheimers at 66. Passed away at 76. Last 4 years of her life she didnt remember any of u

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Alzheimers doesn't have the same life expectancy as other types of dementia. My dad's was vascular dementia.

The below is pure propaganda because they don't want to go out on a limb. This is from other studies not the one in the OP. I just thought it might add some context


"naturally-occurring" LOL

The current research shows that there is likely to be a relationship between naturally-occurring metals and the development or progression of Alzheimer's disease. But the evidence doesn't yet show whether this relationship actually causes Alzheimer's disease.


Another one on Aluminium

https://scitechdaily.com/alzheimers-disease-linked-to-exposure-to-aluminum/

That sucks... My uncle is just now getting dementia after him and my aunt had taken care of her live-in mom who just passed away at 101. They weren't able to leave the house together for the last 5 years.

I've not had a family member that has had it, I can't imagine how hard that is.

Recently I had to introduce myself back to the father of an old friend of mine who I've known for over 40 years since I was in elementary school.

I was at her oldest son's graduation dinner and he and her mother were there and he came up to me and said Hi, I'm Sully. Knowing he had been dealing with Alzheimers, I simply introduced myself back to him and he said nice to meet you.

Later in the evening, my friends son put his gown and cap back on to take photos with us and her father leaned into me and asked "why is he wearing that funny outfit"?

I told him that he had graduated from high school earlier. He just said "oh".

Overall he was smiling, pleasant and enjoying the evening for the most part, but it was sad to me. He was a brilliant civil engineer with Exxon for decades and then did a lot of investing after he retired. Brilliant man.

I'm not sure if he'll ever get to the angry point, or honestly if they've gone through that much, but it's just heartbreaking to look into someone's eyes and see they're fading away.

But I also know the best way to deal with it is just go with it and don't try to correct.

Most everything I know about Alzheimer's comes from stories of one of my mother's friends dealing with her parents' decline. This goes back 20+ years.

One story I remember is her father installing a lock on the bedroom door that locks from the outside. When his wife got to where he couldn't handle her - she couldn't remember him and would panic - he would just push her in the room and lock the door. That sounds and is horrible, but it was the only way he could deal with her. That's when their children stepped in and found a facility for their mother.

My mother just heard from her friend, first time in over a year. She is now in memory care herself.

Health-Summary-2.16.pdf (whitehouse.gov)

but for how long can you prop someone up, make them read the lines you put in front of them, and then send them to the beach or the basement?

many diseases are evil, but this one is particularly so as it destroys who the person is/all that they know/etc....

maternal grandfather died from this, my wife's paternal grandmother currently has this, it's incredibly difficult watching the loved ones they were become the person they end up.

C@LAg said:

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we just put our dad (82) into assisted living memory care last Monday; he has both dementia and Alzheimers.

He was diagnozed with Alzheimers in 2017, but in retrosspect he likely was showing earlier 2+ years before that.

physically he is very healthy. His mom lived to be 96.

we are prepared that this is going to be a very long, very costly.

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it depends on the type of dementia. My dad had it for the last four years and he spent his last two years in Bryan at Senior Living in Bryan, TX (parcattraditions.com)

samurai_science said:

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The below is pure propaganda because they don't want to go out on a limb. This is from other studies not the one in the OP. I just thought it might add some context


"naturally-occurring" LOL

The current research shows that there is likely to be a relationship between naturally-occurring metals and the development or progression of Alzheimer's disease. But the evidence doesn't yet show whether this relationship actually causes Alzheimer's disease.


Another one on Aluminium

https://scitechdaily.com/alzheimers-disease-linked-to-exposure-to-aluminum/

---

Is the aluminum ingested?

Does drinking often from aluminum containers or eating things wrapped in aluminum, like baked potatoes, help cause this?

If so..... I am screwed!

C@LAg said:

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we just put our dad (82) into assisted living memory care last Monday; he has both dementia and Alzheimers.

He was diagnozed with Alzheimers in 2017, but in retrosspect he likely was showing earlier 2+ years before that.

physically he is very healthy. His mom lived to be 96.

we are prepared that this is going to be a very long, very costly.

---

My Mom was very healthy but died less than a year later in assisted living. We thought since my Grandmother lived 19 years with Alzheimers my mom would too. Just 10 years with her.

txaggieacct85 said:

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"The mean (SD) survival time after dementia diagnosis was 4.1 (2.6) years, and more than 2 years were spent in moderate (14-month) and severe (12-month) stages"

Dementia after age 75: survival in different severity stages and years of life lost - PubMed (nih.gov)

My dad had dementia the last four years of his life, which is right in line with this study. He died at 83.

---

My mom's experience (died last month) was pretty similar to the timeline described in the report for when women have it. We cared for her at our home...until we couldn't. It was a slow and painful process, but like everyone else, you just do your best.

Did we get an update on this bombshell from middle of 2022?
https://www.theguardian.com/society/2022/jul/23/alzheimers-study-fraudulent

Quote:

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Critical elements of leading Alzheimer's study possibly fraudulent

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My mom was diagnosed last year. Thanks for that disheartening statistic.

TheEternalPessimist said:

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samurai_science said:

---

The below is pure propaganda because they don't want to go out on a limb. This is from other studies not the one in the OP. I just thought it might add some context


"naturally-occurring" LOL

The current research shows that there is likely to be a relationship between naturally-occurring metals and the development or progression of Alzheimer's disease. But the evidence doesn't yet show whether this relationship actually causes Alzheimer's disease.


Another one on Aluminium

https://scitechdaily.com/alzheimers-disease-linked-to-exposure-to-aluminum/

---

Is the aluminum ingested?

Does drinking often from aluminum containers or eating things wrapped in aluminum, like baked potatoes, help cause this?

If so..... I am screwed!

---

Al is very common in its oxidized form and is everywhere.

How long do you think Biden will last given he's had dementia for at least two maybe three years?

My dad had vascular dementia and passed this summer. I started noticing in 2020 that we were having the same conversation over and over, year by year. The only difference being that the phone calls were getting shorter and shorter. "How is your family? Did you get any rain? How's work going?" Just prior to the end, I realized that was his way of keeping his decline from me.

Ultimately, congestive heart failure is what caused him to pass, but the dementia made it a long slow decline.

annie88 said:

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I've not had a family member that has had it, I can't imagine how hard that is.

Recently I had to introduce myself back to the father of an old friend of mine who I've known for over 40 years since I was in elementary school.

I was at her oldest son's graduation dinner and he and her mother were there and he came up to me and said Hi, I'm Sully. Knowing he had been dealing with Alzheimers, I simply introduced myself back to him and he said nice to meet you.

Later in the evening, my friends son put his gown and cap back on to take photos with us and her father leaned into me and asked "why is he wearing that funny outfit"?

I told him that he had graduated from high school earlier. He just said "oh".

Overall he was smiling, pleasant and enjoying the evening for the most part, but it was sad to me. He was a brilliant civil engineer with Exxon for decades and then did a lot of investing after he retired. Brilliant man.

I'm not sure if he'll ever get to the angry point, or honestly if they've gone through that much, but it's just heartbreaking to look into someone's eyes and see they're fading away.

But I also know the best way to deal with it is just go with it and don't try to correct.

---

This is such a great post Annie! My Dad has been slowing down for some time now, and we are not using the A-word, but it is having an impact on him. He still knows all of us, and is still involved with stories, and even sometimes is alert enough to tell them with just a little assistance. I am SO grateful he is nearby and my sister checks in on both Dad and Mom almost every day. I'm able to get over there every few weeks.

I look at it as just being of service to them both, and helping Mom and Dad go through this journey with their loving family all around. I'm so grateful that I get to be here and help them along this path. They have been such wonderful parents to me. When people appreciate something about my character, I just point back to them for the upbringing they gave me.

Well there would be no point in correcting someone with dementia

Man was given a garden...everything distributed so as to be perfectly harmless to its inhabitants. We just couldn't let that be...had to reformulate the mix and concentrate its individual components...as if we knew better than an omniscient creator.

Looking forward to a "new Heaven and new Earth". Hope to see you there!

ravingfans said:

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I look at it as just being of service to them both, and helping Mom and Dad go through this journey with their loving family all around. I'm so grateful that I get to be here and help them along this path. They have been such wonderful parents to me. When people appreciate something about my character, I just point back to them for the upbringing they gave me.

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Your comments reminded me about this article that I came across early in our care for my mom. It was really helpful.

https://faithmag.com/dear-father-joe-my-mother-has-been-diagnosed-dementia

Quote:

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In the first five years of my life, I was basically unaware. I don't have any conscious memories of my life at that point. I don't remember the exact moment when I became aware of Mom and the role she played in my life. I know it wasn't until I was much older that I actually appreciated her in a manner that was/is consistent with the level of gratitude that I should have possessed.

I don't know how many times she stayed up all night with me as a child. I don't know how often she missed meals because I had a need. I don't remember her pushing through personal sickness to care for me. I had no ability to remember those things.

And yet, she did them.

I wasn't capable of seeing and acknowledging her innumerable sacrifices; I lacked the ability to even notice it but she still did it and that, to me, is one of the most loving, pure and amazing things about parenthood.

It was an awful gift, but also a beautiful one when it struck me that her affliction was my chance to love her in the same way she loved me.

In the loss of her memory and her mind, I was given the gift of being able to love her and care for her without thanks, without memory.

---

TheEternalPessimist said:

---

samurai_science said:

---

The below is pure propaganda because they don't want to go out on a limb. This is from other studies not the one in the OP. I just thought it might add some context


"naturally-occurring" LOL

The current research shows that there is likely to be a relationship between naturally-occurring metals and the development or progression of Alzheimer's disease. But the evidence doesn't yet show whether this relationship actually causes Alzheimer's disease.


Another one on Aluminium

https://scitechdaily.com/alzheimers-disease-linked-to-exposure-to-aluminum/

---

Is the aluminum ingested?

Does drinking often from aluminum containers or eating things wrapped in aluminum, like baked potatoes, help cause this?

If so..... I am screwed!

---

You would be surprised what they put Aluminum in.

They even put it in deodorants, there is a reason patients with Chronic Kidney Disease are told not to use them, the pours under the arm allow it into the blood stream.

annie88 said:

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I've not had a family member that has had it, I can't imagine how hard that is.

Recently I had to introduce myself back to the father of an old friend of mine who I've known for over 40 years since I was in elementary school.

I was at her oldest son's graduation dinner and he and her mother were there and he came up to me and said Hi, I'm Sully. Knowing he had been dealing with Alzheimers, I simply introduced myself back to him and he said nice to meet you.

Later in the evening, my friends son put his gown and cap back on to take photos with us and her father leaned into me and asked "why is he wearing that funny outfit"?

I told him that he had graduated from high school earlier. He just said "oh".

Overall he was smiling, pleasant and enjoying the evening for the most part, but it was sad to me. He was a brilliant civil engineer with Exxon for decades and then did a lot of investing after he retired. Brilliant man.

I'm not sure if he'll ever get to the angry point, or honestly if they've gone through that much, but it's just heartbreaking to look into someone's eyes and see they're fading away.

But I also know the best way to deal with it is just go with it and don't try to correct.

---

You handled that well. And your last sentence is perfect. My nature is to correct, but in these situations I had to learn not to do so.

I acquired my CPA practice from a much older man, so the clients from his peer group were old as well. Time and time again I witnessed them starting to show the effects of dementia or such. I asked one of them to bring his bank statements and, almost childlike, he asked "what is a bank statement?

I was walking back from the bank one day and one of my clients, a retired dentist, ran into me and said hi. We did the small talk for a bit as we walked along and he asked me where I was going and I said to my office. He asked where my office was. I realized he was not having a good day mentally and I told him where it was, even though he had been there 200 times in the prior 20 years or so. He was walking further on and I crossed the street to my office and we said our goodbyes and he didn't recognize the place.

All those once brilliant minds, doctors, dentists, engineers, teachers, etc. suddenly fading away, just as you said. I grew up in this town and many of them were parents of people I went to school with and parents of friends of mine. In four or five cases, I would worry about them finding their way back home. So, after they drove off, I would get in my truck and drive to where they lived to be sure they had gotten back home.

It truly is heartbreaking to see it happen.

txaggieacct85 said:

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Well there would be no point in correcting someone with dementia

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You'd be surprised that some people will try.

We lost my FIL earlier this year to dementia. That study was fairly spot on at around 4 years from diagnosis to death although there were slight signs a couple of years before that in hindsight for us.

The whole process from realizing and discovering there is an issue, watching them live with it and slowly deteriorate, and then having to make a decision on when you step in and make a life altering decision on their behalf when they really don't understand it or agree with it is traumatic to say the least.

And for those that can't afford care and deal with this on their own with them as live ins and you are the acting "healthcare provider"? Y'all are saints and I have the utmost respect for you.