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IIH (Idiopathic intracranial HTN)

483 Views | 5 Replies | Last: 1 yr ago by JBLHAG03
aznaggiegirl07
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AG
So, i went in for a routine eye exam in December, and they saw that my optic nerve was inflamed. They suspected drusen or IIH, but the MRI came back negative for drusen or tumors(which is great), but i have a spinal tap scheduled for next week.

Boo.
dcbowers
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AG
So sorry to hear this. It's none of my business, but are you overweight? One of the risk factors for IIH or pseudo-tumor cerebri is obesity, and it often improves with weight loss.
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bigtruckguy3500
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Do you get frequent headaches? Worse in the morning, worse when leaning forward? Was this an optometrist or ophtalmologist that did your eye exam?
aznaggiegirl07
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AG
dcbowers said:

So sorry to hear this. It's none of my business, but are you overweight? One of the risk factors for IIH or pseudo-tumor cerebri is obesity, and it often improves with weight loss.


No, def not. Could I lose a few pounds? Yes
aznaggiegirl07
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AG
bigtruckguy3500 said:

Do you get frequent headaches? Worse in the morning, worse when leaning forward? Was this an optometrist or ophtalmologist that did your eye exam?


Optometrist then referee me to an ophthalmologist
JBLHAG03
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AG
I dealt with this and saw three different neuro ophthalmologists. I had a spinal tap, took 6 pills a day for several years, etc. The last doctor finally figured out damage was from taking accutane in my teens - intracranial hypertension is a side effect. I got off all the meds s several years ago and vision is stable.
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